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Wednesday, October 7, 2020 | History

4 edition of Principles and practice in biobank governance found in the catalog.

Principles and practice in biobank governance

Principles and practice in biobank governance

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  • 29 Currently reading

Published by Ashgate in Farnham, Surrey, Burlington, VT .
Written in English

    Subjects:
  • Tissue banks -- Management,
  • Biobanks -- Management,
  • Tissues -- Collection and preservation -- Government policy,
  • Biological specimens -- Collection and preservation -- Government policy,
  • Procurement of organs, tissues, etc. -- International cooperation,
  • Bioethics,
  • Biological Specimen Banks -- standards,
  • Clinical Governance,
  • Public Policy

  • Edition Notes

    Includes bibliographical references and index.

    Statement[edited] by Jane Kaye and Mark Stranger.
    ContributionsKaye, Jane, 1962-, Stranger, Mark.
    Classifications
    LC ClassificationsRD127 .P76 2009
    The Physical Object
    Paginationp. ;
    ID Numbers
    Open LibraryOL23654790M
    ISBN 109780754678250
    LC Control Number2009030145
    OCLC/WorldCa429472462

    Winickoff, D.E. From benefit sharing to power sharing: Partnership governance in population genomics research. In Principles and practice in biobank governance, ed. Jane Kaye and Mark Author: Antonio Casado da Rocha. of human biobanks and genetic research databases (“HBGRD”), which are new HBGRDs, although many of the principles and best practices can also be usefully applied to HBGRDs already in existence. and governance File Size: KB.

    Richards, Martin, Adrienne Hunt, and Graeme Laurie, “ UK Biobank Ethics and Governance Council: An exercise in added value,” in Jane Kaye and Mark Stranger (eds.), Principles and Practice in Biobank Governance . The paper ends with an analysis of some key governance principles that ought to be respected to ensure appropriate privacy protection in the context of biobank research. These governance principles are widely accepted and integrated in various other governance .

    Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, "Principles and Practice in Biobank Governance" draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles . Biobank governance is always a response to sociocultural challenges and requires the building of trust, acceptance, and careful political negotiation. Biobanks are regulated in networks of governance in .


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Principles and practice in biobank governance Download PDF EPUB FB2

Principles and Practice in Biobank Governance: Medicine & Health Science Books @ ed by: Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges.

Current models of governance are critiqued, principles and policies. Principles and Practice in Biobank Governance - Kindle edition by Jane Kaye, Mark Stranger, Jane Kaye. Download it once and read it on your Kindle device, PC, phones or tablets. Use features like bookmarks, note taking and highlighting while reading Principles and Practice in Biobank Governance.

It is a much needed collection that lives up to its offer to provide principles and practice for biobank governance.' Eric M. Meslin, Indiana University Center for Bioethics, USA 'The governance of. Principles and Practice in Biobank Governance by Jane Kaye,available at Book Depository with free delivery worldwide.5/5(1).

Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate.

In the. This volume is the first comprehensive text on human biobanking, authored by scientists and regulatory officers who have led the field over the past 10 years. It covers biobanking issues and its importance.

Principles and practice in biobank governance / edited by Jane Kaye, Mark Stranger. () Stem Cell Banking [electronic resource] / edited by Dusko Ilic. () Tissue and cell processing [electronic Author: Patricia F Anderson.

Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, "Principles and Practice in Biobank Governance" draws together the latest empirical research Format: Hardcover.

Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Brand: Mark Stranger. Summary: "Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research.

The principles outlined in Table 2 are vital not only to genetic and genomic research, but to the overall governance structure of biobanks. A biobank governed by policies and guidelines that are.

Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Author: Mark Stranger.

Principles and practice in biobank governance Kaye J., Stranger M. © Jane Kaye and Mark Stranger The collection and storage of human tissue for medical research is not a new by: This book considers the right to know and the right not to know about your own and others’ genomes.

Principles and practice in biobank governance. Book. We describe principles for good. Principles and practice in biobank governance. [Jane Kaye; Mark Stranger;] -- Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international. (ebook) Principles and Practice in Biobank Governance () from Dymocks online store.

Rapid technological advances, the establishment of. UK BIOBANK ETHICS AND GOVERNANCE FRAMEWORK Version (October ) UK BIOBANK 3 Purpose and overview 3 Organisation and funding 3 I. RELATIONSHIP WITH PARTICIPANTS 4 A.

RECRUITMENT 4 1. General principles. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the Brand: Taylor And Francis.

Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, Brand: Taylor And Francis.

Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores: the interrelated conditions needed for a biobank .Biobank research and genomic information are changing the way we look at health and medicine.

Genomics challenges our values and has always been controversial and difficult to regulate. Ethics, Law and Governance of Biobanking National, European and International Approaches This book .Principles and Practice in Biobank Governance Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions .